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All news

Find out the latest news about JDRF's research and fundraising events.

16
Apr

Thanks, America – massive $300m investment for type 1 diabetes research agreed by US government

The US Senate has passed legislation for a huge $300m (£200m) funding pot for type 1 diabetes research.

In a boost for JDRF’s mission to find the cure for type 1 diabetes, US Senators approved the country’s Special Diabetes Program (SDP) for two additional years.

This ensures $150m (£100m) can be spent in each of the next two years supporting cutting-edge type 1 diabetes research at the country’s National Institutes of Health.

President Obama is shortly expected to sign the funding into law at the White House.

The Special Diabetes Program has been funded by the US since 1998. Since its inception it has demonstrated results in type 1 diabetes research and has enabled scientists to make significant advances in prevention studies and treatment improvements. These have included the artificial pancreas project.

Karen Addington, Chief Executive at JDRF in the UK, said: 'The renewal of the Special Diabetes Program is excellent news for type 1 diabetes research globally. We congratulate the thousands JDRF of supporters across the United States for approaching their local senators and representatives about why they most vote to renew it.'

She added: 'With our #CountMeIn campaign, JDRF in the UK is calling on candidates standing for the 2015 General Election to take inspiration from across the Atlantic, and to commit to supporting type 1 diabetes medical research if they are elected.'

Join us – learn more about the #CountMeIn campaign.

14
Apr

Researchers harness 'nothing to see here' protein to improve cell transplants

JDRF researchers have found a protein that can protect insulin-producing beta cells from the immune system, potentially paving the way for beta cell transplants that don’t require anti-rejection drugs.

Professor Mark Poznansky and his team at Massachusetts General Hospital had been studying the protein, known as CXCL12, for many years because of its role in the immune system. It has a repellent effect that drives immune cells away from the area where they are produced so that they can fight infection in the rest of the body.

The team then turned this effect on its head, using the protein to repel the immune cells from the beta cells they mistakenly try to attack in type 1 diabetes. When they encased beta cells in a gel coating that contained the protein, and implanted them into mice with type 1, the researchers found the mice produced their own insulin for at least 300 days. This was over 6 times longer than in mice where the cells’ gel coating did not contain any of the protein.

If the work continues to prove successful, it could be used alongside JDRF beta cell research (such as that announced by Professor Doug Melton in October last year), to generate large numbers of implantable, insulin-producing cells that are kept safe from the immune system. This concept, known as encapsulation, would offer people with type 1 the opportunity to regain their insulin-producing cells, eliminating the need for insulin injections and carb counting.

Commenting on the finding, Professor Poznansky said: ‘The encouraging picture painted by our studies to date has led us to the next step in our research. JDRF is now funding a 2-year pilot study to investigate whether this approach of including CXCL12 in the gel capsule will work when greater numbers of capsules are implanted into larger animals.’

He continued: ‘One of the most exciting aspects of CXCL12 is that, if the protein proves safe and effective, its applications could go beyond use in encapsulated cell therapies: it might also be useful in developing drugs to block the autoimmune attack on still-active beta cells in the early stage of the condition, slowing or ultimately preventing the progression to insulin dependency.’

The research was published in the American Journal of Transplantation.

10
Apr

Today, April 10, is Sibling Day. JDRF salutes children and adults who love their brothers and sisters with type 1 diabetes!

Five-year-old Hugo Stroud doesn’t have type 1 diabetes – but he’s committed to helping find the cure. His big sister Bia, who is nine, was diagnosed with the condition four years ago this month, and so little Hugo is a passionate supporter of both her and JDRF.

The Stroud family are well-known JDRF fundraisers in south London, with Hugo himself taking part in two London Bridges Walk to Cure Diabetes events. He gamely tackled the route via buggy, scooter and his dad Andrew’s shoulders.

Young siblings of children living with type 1 diabetes can face the challenge of their brother or sister receiving some inevitable extra parental attention, due to the demands of managing the condition.

When JDRF asked dad Andrew what it was like for Hugo to have a sister with type 1 diabetes, he said: “He knows that Bia needs to have sweets or juice at funny times and they are not treats but medicine because she is poorly (hypo). He doesn’t question this or whine for sweets for himself.”

He added: “Mealtimes always begin with testing Bia and carb counting her food, which Hugo is used to. We have a spare test kit in a kitchen drawer, and sometimes Hugo tests himself as well!”

Andrew explained: “Hugo will come and fetch us if she asks him to, and will also get her bag or her meter. When we were on injections instead of an insulin pump, he would sometimes help to get the needles out of the box. He comes along to the type 1 family support group meetings that I run, and gets involved with the other kids there.”

Hugo was also in the Parliament Square crowds to cheer on his father during the first Ride London 100 cycle event. Also, he tried to lend a hand at his big sister’s school during a cake and book sale for JDRF.

Liz Rowley, JDRF’s Regional Fundraiser for London, said: “People with type 1 diabetes often rely on their amazing families, so when you have a sibling who does everything they can to support you and your needs with type 1, that's a wonderful thing. I'm lucky to have a sister who has been there for me since my diagnosis at age four.

“So Sibling Day is a wonderful opportunity for these committed brothers and sisters to be thanked for everything they do – for their sibling, and for fundraising in their community.”

Find out how you and your family and friends can support JDRF in your local area here.

Siblings and type 1 diabetes research:

Brothers and sisters play a vital role in type 1 diabetes research. Dr Kathleen Gillespie of the University of Bristol is leading a JDRF-funded research study trying to understand why some people get type 1 diabetes and some do not. She explains 'Over the last 30 years our research has focused on relatives of children with type in diabetes. Brothers and sisters have made an enormous contribution; since 1985, 2482 brothers and sisters have joined the BOX study.' 

'The information and vital blood samples they have given us has helped us work out who is at risk of type 1 diabetes. We are now using this information to help us understand why some people develop type 1 diabetes in early childhood while others are not diagnosed until adulthood, or indeed ever. If we can understand what these differences are, we may be able to harness this knowledge to slow or entirely prevent type 1 diabetes.'

The Barts Oxford (BOX) study has been running for 30 years recruiting people who were diagnosed with type 1 diabetes before they were 21 and their families in Northamptonshire, Oxfordshire, Buckinghamshire and Berkshire. Today, over 1800 families are taking part in the study. Without their long-term involvement in type 1 research, studies like Dr Gillespie's would not be possible, and we would be a lot further from our goal of preventing type 1 diabetes than we are today.

10
Apr

No, your divorce did NOT cause your child's type 1 diabetes

JDRF has responded to media reports that serious life events in childhood can triple the risk of developing type 1 diabetes.

The reports claim children experiencing conflict in the family, separation and divorce, death or illness of a loved one - or even the arrival of a new child or adult in the family - face a raised risk of the condition. They are based on new research from Linköping University, Sweden.

Sarah Johnson of type 1 diabetes charity JDRF said: “What must be remembered is that it’s impossible to live a life without stress, and impossible to create a stress-free childhood for your son or daughter. There's no family in the world that has managed to shield its children from all forms of stress.

“Yes, this study indicates that potentially, life’s inevitable stresses could hasten the development of type 1 diabetes in some people. But while this study looked at a large population of 10,495 families, in fact only 58 children went on to develop type 1 diabetes, so this means it is very hard to draw firm conclusions about how the condition develops.

“Overall, this study acts as a reminder that the mind and body are not separate and that the effects of stress on the immune system should not be forgotten when looking at how type 1 diabetes develops. But the researchers are clear that the risk of developing type 1 diabetes after a serious life event is four times smaller than the risk from having a close relative with the condition.

“The most important thing to remember for families affected by type 1 diabetes is that there is nothing they could have done to prevent their loved one's diagnosis. Nobody should ever feel a shred of guilt. Any headlines that imply otherwise are just plain wrong. Our research is working towards a day when we can prevent type 1 diabetes before it has begun - but we are not there yet.”

07
Apr

Aberdeen ball raises £91,000 to help find type 1 diabetes cure

JDRF Scotland’s 10th annual gala ball has raised a fantastic £91,000 towards finding the cure for type 1 diabetes. The ‘Highland Mist’ themed event was attended by over 220 guests and took place at the Ardoe House Hotel last month in Aberdeen.

The evening was hosted by radio and television personality Grant Stott and included an exclusive drinks reception, a bespoke themed dinner and a live and silent auction. The ballroom was decorated in Scottish Highland colours and guests were treated to modern Celtic dancing from the Scott School of Dancing.

Guests were also told about how the money raised on the night would be going towards JDRF’s work supporting curing, treating and preventing type 1 diabetes. They learnt more about current JDRF funded projects such as smart insulin, the artificial pancreas and encapsulation.

Claire Douglas, regional fundraiser for JDRF Scotland, said: “We would like to thank everyone who attended the ball and those that kindly donated prizes and volunteered their time on the evening. It’s thanks to them and the hard work of the ball committee that the evening was such a huge success.”

She added: “We are also very grateful to our corporate sponsors whose support and generosity was invaluable on the night. We really would not have been able to achieve any of this without everyone’s support.”

See more photos from the event here.

Fancy getting dressed up for JDRF? For an evening of glitz and glamour, find out more about our upcoming events here.


31
Mar

Emerging rugby superstar talks about his type 1 diabetes – and salutes fellow JDRF supporters

Henry Slade is a young man with a very, very exciting few months ahead of him.

His thrilling performances for Exeter Chiefs have seen him hailed as an immense rugby talent – and given him a chance of making the England squad for the 2015 Rugby World Cup on home soil. 

He wishes, however, that he didn’t have to live with type 1 diabetes. “It’s a ball ache,” he said. “You can’t be spontaneous sometimes. You have to think about what you eat and be mindful of everything you’re consuming. But at the end of the day you can still run, kick and tackle.”

Henry believes his naturally focused and determined mind-set, which helped him rise as a sportsman, has also helped him cope with the demands of the condition. “I’d rather have it myself than my brothers,” he said. “They aren’t obsessive-compulsive like me.”

Speaking to JDRF in the Exeter Chiefs’ impressive and modern Sandy Park stadium on the edge of the city, Henry said that he liked the sound of JDRF’s smart insulin research. He said: “It’s exciting when you hear about it (smart insulin). One injection a week would be a lot better than fifty a week. It could help a lot of people.”

Now 22, Henry was diagnosed when he was 18, in the weekend before his A-Level exams.  He’d been raised by a father with type 1 diabetes. So when his own diagnosis came, it was vexation that he felt, rather than fear of the unknown. “I was frustrated,” he said. “I’d lived it with my dad. I knew that he always needed to be prepared. I’d always hated needles. It took me about 20 minutes to do my first insulin injection.

“Obviously it’s a serious condition. There’s no getting around that. But it’s okay as long as you manage yourself. I check my blood sugar levels about eight to ten times a day. I test before every training session and in between as well.”

Henry isn’t the only rugby star trying to establish himself in the England squad while balancing the demands of type 1 diabetes. Fellow JDRF supporter Chris Pennell, of the Worcester Warriors, also lives with the condition. “When we’ve had England camps we’ve had a few good chats about it,” said Henry, adding that the pair have swapped notes on the effects of adrenaline on blood glucose levels. “He has a jab at half time,” said Henry. “I haven’t done that yet.”

Being an international-level athlete hasn’t protected Henry from being asked a few dumb questions about his condition by people who don’t understand type 1 diabetes. “People would say I just got it from eating too many sweets,” he said.

But when asked what his message was to JDRF’s legion of supporters across the UK and worldwide, he said with a smile: “You’re doing a really good job raising awareness. Keep up the good work.”

But Henry’s heroics for Exeter Chiefs, helping the team ride high in the Aviva Premiership, demonstrate that type 1 diabetes doesn’t need to hold anyone back in life.

See how you can take part in a sporty adventure with JDRF. 

Also see the Exeter Chiefs’ website. 

30
Mar

Make a splash for JDRF and tackle the Thames this summer

 JDRF is delighted to have teamed up with the Henley Swim organisers to bring you the Henley Mile this summer – a fun downstream swimming event for all of the family.

 Taking place on Sunday 12 July in Henley-on-Thames, the event gives adult and older children a chance to swim a mile of the iconic Thames – while also allowing children as young as eight to have a shorter splash in the river.

 Adele Claase, Head of Events at JDRF, said: “A child’s diagnosis with type 1 diabetes has a big impact on the whole family. Those with the condition must take insulin every day to stay alive, and constantly monitor their blood glucose levels. This turns a typical family day out into a major challenge for parents.

 “We are delighted therefore that those enjoying a Henley Mile family day out this summer can support JDRF on its mission to find the cure for type 1 diabetes. Funds raised will help JDRF support vital medical research into the condition.”

 She added: “As a charity we fund research all over the globe. But with some of the world’s best type 1 diabetes research taking place here in the UK, it feels right to be fundraising with Henley Swim in the nation’s most internationally recognised river – the Thames.”

 Jeremy Laming, Henley Swim co-founder said: “We are excited to have JDRF on board as our nominated charity for The Henley Mile. The Mile is the most family-centric of all our events,  it will be great to see families and individuals enjoying an active day out on the Thames, whilst raising money for  much needed research into type 1 diabetes.”

 Adults can take part in two distance options, making it perfect for experienced open water swimmers or for those new to the sport.  There is also an option for parents and children to swim together, and three distances to choose from for junior swimmers.

 For more information, and to sign up to the event, go to jdrf.org.uk/henley

 

27
Mar

Injection of millions: massive investment follows Dr Melton’s stunning stem cell research breakthrough for type 1 diabetes

You’d be forgiven for suspecting that things sometimes go a bit quiet after global headlines shout about a type 1 diabetes research breakthrough.

But JDRF’s Harvard hero Doug Melton, whose work turning stem cells into insulin-producing beta cells made worldwide news last October, has announced two massive new business collaborations designed to bring his research to fruition sooner.

The first, which has raised £30 million from several companies including Medtronic, will aim to develop beta cells that can be transplanted into the body.  In type 1 diabetes, the immune system destroys these insulin-producing beta cells, so a procedure that could give them back to people could mean an end to insulin injections and blood glucose testing. It’s why we, too, are funding Dr Melton as part of our encapsulation research.

The second collaboration, a partnership with pharmaceutical company AstraZeneca, will see researchers study the beta cells to learn more about their biology, giving us new insights into how type 1 diabetes develops. The cells will also be tested against many of the drugs developed by AstraZeneca, to see if any could be used to cure or even prevent the condition.

Until now, beta cell research in both of these fields had been hindered by a lack of donated pancreases, and by the more lengthy process normally used to grow the cells in the lab. Work by Melton, and by other JDRF-funded researchers such as Timothy Kieffer, should therefore help speed up the process of turning lab-based discoveries into treatments for people with type 1 diabetes.

Dr Clare McVicker, Director of Research Advocacy at JDRF in the UK, said: ‘A £30m investment is a huge stamp of approval for Dr Melton’s research. Business only backs scientific developments when it sees true potential – and this could change type 1 diabetes treatment globally.’

Read more about Dr Melton here.

27
Mar

Hollywood hero and JDRF supporter Jeremy Irvine – who lives with type 1 diabetes – to star in upcoming gay rights epic from Independence Day director

Cambridgeshire-born Jeremy Irvine has finished filming a drama about New York’s 1969 Stonewall Riots – which helped established the modern gay rights movement.

The film, Stonewall, is directed by Roland Emmerich who is best known for blockbusters Independence Day and The Day After Tomorrow.

Jeremy has had type 1 diabetes since the age of six. He will play the lead role of Danny, a gay young man who is kicked out of his home and flees to New York. Finding solace in the Stonewall Inn, he meets a group of friends who inspire him to demonstrate against the homophobic hatred and violence that they experience.

Since rising to Hollywood fame with Stephen Spielberg’s War Horse, Jeremy decided to avoid taking roles in blockbusters and concentrate on ‘character acting’ – before recently returning to box-office roles with Woman in Black 2.

Away from the camera, Jeremy has campaigned with JDRF to raise awareness and understanding of type 1 diabetes. A passionate supporter of medical research, he has also personally taken part in JDRF-backed trials of the artificial pancreas.

Learn more about JDRF's programme of type 1 diabetes research

20
Mar

Love art? Leading international exhibition launch party to help find type 1 diabetes cure

Art Antiques London is one of the world's leading art and antiques fairs idyllically located in Kensington Gardens, London. JDRF is delighted to be hosting an exclusive preview of the fair on Wednesday 10 June 2015 at Art Antiques London Party in the Park – an annual highlight of the London social calendar. 

A marriage of quality and style, it will bring together 70 of the world's leading art and antique specialists offering a collection of the finest works of art from the traditional through to the modern and contemporary. In partnership with The Week magazine, all income from the event will go towards supporting JDRF’s mission to cure, treat and prevent type 1 diabetes.

Patron of this year’s event is Emmy award winning actress Susan Hampshire, OBE, well known for her roles in Monarch of the Glen and The Forsyte Saga.

She said: “People with type 1 diabetes do a wonderful job of getting on with their lives. But its effects aren't always obvious. Until my nephew Oliver was diagnosed, I didn’t know much about the condition. The daily injections, the blood testing, the carbohydrate counting, the sleepless nights – these are just some of the many things that made me realise the extent to which it takes over. But the only people who really know how demanding this condition is are the ones that are affected by it every day.

“That’s why I’m supporting JDRF as patron of Art Antiques London Party in the Park. I’m delighted to be able to play my part.”

The event regularly attracts attendance by royalty, celebrities and leading industry figures. Some names that have attended in the past include Tracy Emin, Claudia Winkleman, the Countess of Wessex, Michael Portillo, Scissor Sisters, Gyles Brandreth, Sarah Ferguson, Princess Beatrice, and Cressida Bonas.

Karen Addington, Chief Executive of JDRF said: “Many thanks to the Art Antiques London organisers, the Haughtons, for giving JDRF this fantastic opportunity. We were privileged to be the beneficiary charity for the 2012 event where a fantastic amount was raised for JDRF. We hope this wonderful social occasion will bring in even more this year.”

She added: "We fund some of the best type 1 diabetes research all over the globe, much of which takes place right here in the UK - including London. So it seems fitting that this event for JDRF takes place in our capital."

Located in a purpose-built pavilion in Kensington Gardens opposite the Royal Albert Hall, tickets are available to both the Art Antiques London Party in the Park reception and the renowned dinner.  There will also be a fabulous auction with top luxury prizes on offer.

For more information, and to purchase a ticket, go to jdrf.org.uk/partyinthepark2015.

 

11
Mar

Type 1 diabetes vaccine possible ‘within a generation’

A vaccine for type 1 diabetes could be developed ‘within a generation’, according to researchers leading four new UK-based studies.

The £4.4 million Diabetes UK research project, co-funded by JDRF (£1.1m) and with support from Tesco (over £3.3m), could produce the first working vaccines within the next 10 years. As well as helping to delay or even prevent type 1 in those at high risk, these vaccines would also be an important step towards a cure for the condition, working in harmony with other treatments to reduce damage to insulin-producing cells in the pancreas.

In the first of the new studies, Professor Mark Peakman at King’s College London will lead the UK’s first ever trial of a prototype vaccine in children and teenagers living with or at high risk of type 1. Alongside him, Professor Colin Dayan at Cardiff University will develop a UK-wide network to allow more immunotherapy trials to take place in UK hospitals – and to train the young doctors and researchers who will lead them.

In addition, Professor Desmond Johnston of Imperial College London will continue work to identify people newly diagnosed with type 1 so that more people with the condition can be offered the opportunity to take part in clinical trials.

Finally, Dr Tim Tree, also at King’s College London, will set up a UK-wide network of specialist laboratories to study the impact of immunotherapy trials, investigating how different treatments work and determining if it is possible to predict who will benefit most from each treatment.

Professor Dayan said, “This funding has already led to a bold new collaboration between UK diabetes scientists and will provide an immense boost for this field as we work towards new clinical trials and a step change in our ability to halt the loss of insulin in type 1 diabetes. Within a year or two we will see many more children and adults taking part in this research. Within four years we expect to see results from studies of more than six potential treatments and within ten years we hope to see the first vaccine therapies delivered to patients in the clinic.”

Karen Addington, Chief Executive of JDRF, said: “We are thrilled to collaborate with Diabetes UK on this important research. A child diagnosed with type 1 diabetes at the age of five faces up to 19,000 injections and 50,000 finger pricks by the time they are 18. Our major search for a vaccine takes place within a global push, by some of the world’s very best scientists, to consign this life-threatening condition to history.”

Dr Alasdair Rankin, Diabetes UK’s Director of Research, said: “This research is hugely exciting because it has the potential to transform the lives of hundreds of thousands of people living with type 1 diabetes, as well as leading us towards a longed-for cure.

“We know that none of this will be easy or happen overnight. The first vaccines will probably help people to delay the onset of type 1 diabetes rather than preventing it entirely. But even this would help to reduce the risk of serious complications. In the longer term, a fully effective vaccine would represent a huge medical breakthrough and could transform the lives of people with type 1.”

Rebecca Shelley, Corporate Affairs Director for Tesco, said: “I would like to say a huge thank you to all the Tesco customers and colleagues who raised money for Diabetes UK – it is their hard work that has helped make this happen.”

Since JDRF was established over 40 years ago we have funded more than £1 billion of research worldwide. Find out more about the projects we fund here 

09
Mar

Emma Watson raises awareness of type 1 diabetes by saluting mum with the condition

British actress Emma Watson is helping to raise awareness of type 1 diabetes by saluting her mother who lives with the condition.

At an International Women’s Day event yesterday, Emma – who is famous for her role as Hermione Granger in the Harry Potter film series – was asked who her role model was. She said her mum.

Speaking at the Facebook headquarters in London, Emma said: "She was a single mother and a type one diabetic, so to see her strength and resilience was really inspiring growing up."

This is the first time the 24 year old has publicly spoken out about her mother’s condition. Emma, who is also a Goodwill Ambassador for the UN, added: "She really encouraged me to be an individual” and also referred to her mum as an “obvious choice” for a role model.

Emma isn’t the only Hollywood star with a personal connection to type 1 diabetes. Jeremy Irvine – who rose to fame in blockbuster War Horse – was diagnosed with the condition aged six.

Jeremy said: "Without the research funded by JDRF I don't believe I would be able to have the career I'm enjoying now. Thanks to the huge developments being made in the treatment of type 1 diabetes no child should have to feel diabetes needs to stop them following their aspirations."

09
Mar

Behind the headlines: 'more children showing early signs of diabetes complications'

The media is reporting that 'more children are showing early signs of serious diabetes complications.'

These headlines – clearly alarming for parents of children with type 1 diabetes – stem from today’s release of the National Paediatric Diabetes Audit.

The report actually shows that long-term blood glucose control among UK children with type 1 diabetes is improving, not worsening, and this fact behind the headlines is heartening. The increase in children showing early indications of future potential complications is instead due to the fact that increasing number of children are developing the condition. Individual children with the condition are not increasingly at risk.

Of further reassurance to families affected by type 1 diabetes is the fact (stated by the report itself) that early signs of eye, kidney and foot complications in children can be reversed by good control of blood glucose levels.

Sarah Johnson, Director of Policy and Communications at type 1 diabetes charity JDRF, admitted aspects of the report were concerning. She said: 'Although we’re pleased to see an increase in the number of children achieving in-range blood glucose control, we are alarmed by the numbers showing signs of complications at such a young age. Improvements in treatment and early interventions to prevent these complications need to be prioritised urgently by the NHS, and healthcare professionals must be given the help and resource they need to help their young patients manage a serious, life-long condition.'

Some of the media headlines also focused on a detail of the report that stated 'one in four children over the age of 12 who have type 1 diabetes are classed as obese.'

She added: 'We also need to remember that obesity is not a cause of type 1 diabetes. Children with type 1 diabetes have similar rates of obesity as children in the general population – they don’t live in a bubble and are subject to all of the influences and issues that affect their friends and classmates.  Absolutely weight is a factor in helping achieve good blood glucose control, but nothing these children did, or did not do, caused their immune system to attack their pancreas.'

06
Mar

JDRF boss wins UK Charity Leader of the Year after spectacular 12 months of success for type 1 diabetes research

JDRF’s Chief Executive in the UK, Karen Addington, has been crowned Charity Leader of the Year 2015 for her inspirational and successful leadership of the type 1 diabetes charity.

Karen beat 800 other nominees from across the UK to the Charity Staff Foundation’s award, receiving it at a prestigious ceremony yesterday evening in central London.

She said: “I’m delighted to accept this award on behalf of JDRF’s amazing supporters throughout the UK and the wider world. 2014 was a very special year for breakthroughs in the type 1 diabetes research that we fund.”

Karen added: “The most brilliant non-profit organisations always have much in common with the most successful businesses – and vice-versa. They combine head and heart; strict efficiency and focus, alongside real passion for meeting people’s needs. Families affected by type 1 diabetes need a cure. The day will come.”

Reacting to her award, Mark Flannagan, CEO of Beating Bowel Cancer, described Karen as “one of the sector’s outstanding achievers, fiercely focused on improving the lives of people with type 1 diabetes, who has transformed the charity and the sector.  She's a great team leader on top of it, someone to be emulated.”

Karen’s Charity Leader of the Year award comes after a spectacular 12 months for supporters of the charity both in the UK and internationally, in which:

04
Mar

Diabetes education – MP report highlights postcode lottery

MPs are pressing the Government and local health leaders to ensure that everyone with diabetes has access to high-quality diabetes education and support to help them manage their condition.

Taking control: Supporting people with diabetes to look after their condition, highlights that only 16 per cent of people newly diagnosed with diabetes are offered access to a formal course covering how to effectively manage their condition. And only three per cent of people newly diagnosed with diabetes actually attended one. Released today, the report comes from the All Party Parliamentary Group for Diabetes – the secretariat of which is held by JDRF and Diabetes UK.

People with diabetes have to self-manage their condition 99 per cent of the time. And giving people the knowledge and skills to manage their diabetes effectively, through a formal education course, can lead to improvements in their blood glucose control and therefore reduce long term risk of complications. The NHS spends £10 billion annually on diabetes, 80 per cent of which is spent on treating complications that could often be prevented if the person got the right care in the first place.

The report highlights two key obstacles to people accessing education and support. The first is that Clinical Commissioning Groups (CCGs), the bodies responsible for health in local areas, simply are not commissioning formal education courses in their areas, which means patients do not have the chance to attend a course.

The second problem is that even when formal education courses are offered, they do not always meet the individual needs of people living with diabetes. For example, many of them are held at times that are inconvenient for people who work, and are not effectively promoted. Evidence gathered by the group also revealed a lack of ongoing support after diagnosis, such as refresher courses and more informal styles of learning like peer-to-peer groups.

To ensure that everyone living with diabetes has the skills and confidence they need to manage their condition, the report recommends that CCGs commission convenient and high-quality structured education courses and offer top-up modules for all who wish to attend. It also recommends they offer other learning opportunities about diabetes, and support through peers, groups, ‘taster sessions’ and online courses and communities.

Adrian Sanders MP, Chair of the All-Party Parliamentary Group for Diabetes and who lives with type 1 diabetes, said: “All people with diabetes have to look after their condition day in, day out. This can be extremely difficult, and they only come into contact with doctors and nurses a few times a year. Yet the consequences if they do not manage their diabetes can be devastating.

 “Our report shows that with better commissioning and leadership from national and local government, we can end this postcode lottery of diabetes education. We know that some areas are delivering education and support effectively; we now need to see the NHS getting better at sharing and replicating best practice across all areas. Until this happens we will continue to see people with diabetes unnecessarily facing debilitating complications, and continued unsustainable costs to the NHS.”

Karen Addington, Chief Executive of JDRF said: “Some pockets of NHS diabetes care offer excellent support. But today’s report highlights that many areas are still underperforming and doing a disservice to people with the condition. We’ve heard first hand from our supporters that there needs to be a change in focus – such as more education on the different type 1 diabetes technology available.”

JDRF continuously strives for a fairer deal for people with type 1 diabetes. To find out more and how you can get involved, go to jdrf.org.uk/campaigns

25
Feb

Type 1 diabetes hero Pennell returns to England rugby squad

JDRF supporter and rugby pro Chris Pennell, who lives with type 1 diabetes, has returned to England’s squad for the Six Nations.

As full-back cover for another player recovering from concussion – he’s now got a chance to edge back into the team – after being injured himself at the end of last year.

Diagnosed with type 1 diabetes when he was 19, Chris was unsure what this would mean for his future rugby career. But when he heard of other sportspeople living with the condition, he said to the Telegraph: “That gave me instant reassurance and confidence that you can still achieve what you want to achieve.”

In June 2014, Chris became the first rugby player with type 1 diabetes to score a try for England.

Chris – along with his teammates – got behind our #TypeOnesie campaign last year. He said: “There’s been some remarkable work in pioneering type 1 diabetes research recently. Now more than ever is the time to help raise funds for JDRF.”

Karen Addington, Chief Executive of JDRF in the UK, said: “Living with type 1 diabetes certainly doesn’t have to stop you from achieving great things – Chris proves this. He is a brilliant role model for people living with the condition.”

Find out what other high-profile celebrities JDRF is grateful to have the support of here.

20
Feb

Who is your type 1?

For Valentine’s Day we asked you to tell us who your loved one with type 1 was. Here are your wonderful images you sent in response.

Whether you have type 1 or love someone who does, support from partners and loved ones can make a big difference. So let's thank those who are here for us every day! 

For a chance to meet some new and friendly faces affected by type 1 diabetes, come along to one of our Type 1 Discovery Days. Find your nearest here.

11
Feb

PM David Cameron announces JDRF collaboration for the cure with British Council

UK Prime Minister David Cameron has announced a collaboration involving JDRF and three other leading medical research charities to fund world-class science.

The four charities are working with the British Council to investigate globally challenging conditions and diseases.

JDRF, the British Heart Foundation, the MS Society and Parkinson’s UK are major contributors to the £3.2 million new research programme at leading universities across Britain and Israel. Mr Cameron announced the programme today via Twitter.

Scientists from universities including Cambridge, Cardiff, Edinburgh, Manchester, Nottingham and Oxford will be using cutting-edge research to find cures for type 1 diabetes, heart disease, liver disease, multiple sclerosis and Parkinson’s.

These new projects are the latest addition to the British Council’s Britain Israel Research and Academic Exchange programme (BIRAX) – a £10 million initiative of the British Council investing in world-leading research jointly undertaken by scientists in Britain and Israel. A call for applications was launched by Mr Cameron last year.

Clare McVicker, Director of Research Advocacy at JDRF in the UK, said: “If medical science is to one day triumph over serious conditions such as type 1 diabetes, international collaboration between the best investigating researchers is utterly vital. JDRF is thrilled to partner with BIRAX to expand its Regenerative Medicine Initiative.”

The type 1 diabetes researchers selected to receive new programme funding will explore exciting aspects of regenerative medicine using stem cell therapies. Regenerative medicine research is an important focus for JDRF given its aim to re-establish insulin production and mediate the immune system’s attack on insulin producing beta cells. This could free people with type 1 diabetes from the daily regime of insulin via injections or a pump.

Madi Jacobson, CEO of JDRF Israel said: "JDRF Israel is excited to take part in the Birax initiative, and proud of the leading Israeli researchers involved. It is truly inspiring to be part of a team which holds investing and promoting innovative medical research in high priority. We trust this collaboration of brilliant scientific minds from Israel and UK will improve the lives of millions affected by type 1 diabetes around the world.”

Alan Gemmell, Director of the British Council in Israel said: “BIRAX combines the best of what Britain and Israel can offer the world; world-class scientists working together to improve the lives of millions of people. When the UK’s education and research sectors engage with Israel, the benefits go beyond our two countries and can be truly universal.”

At JDRF we use the money you raise to fund the best type 1 diabetes research in the world. Find out more about our research programme. 

Learn more about the BIRAX research initiative.

08
Feb

BAFTA nominated The Theory of Everything star supports JDRF

The best-actress BAFTA nominated The Theory of Everything star – Felicity Jones – has shown her support for JDRF.

She’s following in the footsteps of her friend and fellow Hollywood actor Jude Law, who also supports the charity. Both are helping to raise awareness of type 1 diabetes, and are calling on the UK Government to give better support to its medical research.

Talking to JDRF yesterday, Felicity said: “Many medical conditions have such a huge impact on daily life. For some the effects are visually obvious to people. But for others – like type 1 diabetes – it’s not.  I didn’t realise to what extent it takes over – the monitoring, carb-counting, injecting, finger prick-testing.

“At Cambridge, Stephen Hawking revolutionised physics. But the university’s medical science is also amazing. JDRF is funding research there to change the future for those with type 1 diabetes.”

 Felicity plays Stephen Hawking’s first wife in the feature-length The Theory of Everything biopic. And she’ll be at the 68th British Academy Film Awards taking place tonight.  Originally from Birmingham, Felicity has also been nominated for an Oscar for her portrayal in the film.

She added: “I was told about JDRF by Jude Law – who supports its #CountMeIn campaign. It’s a great organisation that’s dedicated to delivering a cure for type 1 diabetes. Until then, it campaigns, it offers support, it does a lot.

“It would be wonderful if more people unaffected by type 1 diabetes knew more about it. So if I can do anything to raise awareness – and help bust some myths – then that’s cool!”

JDRF launched a new manifesto as part of its #CountMeIn campaign last week. Millie’s Manifesto – written by 12 year old JDRF supporter Millie Hainge – is asking politicians to recognise the impact of living with type 1 diabetes.

In the run up to the General Election on 7 May, Millie and JDRF are urging people to share the Manifesto with their MP and the candidates standing for election. To get involved, go to jdrf.org.uk/millie.

Photos courtesy of James Appleton Photography.

06
Feb

Behind the headlines: The Daily Mail – fact or fail?

The Daily Mail this morning reported the results of a study from the Lancet under the headline ‘Women with type 1 diabetes are 40 per cent more likely early to die than men with the disease’.

Yet as many people rightly pointed out in the article comments, this headline is somewhat misleading. It could lead people to think that women with type 1 diabetes more often die much younger than men with the condition. This is not the case.

It’s well-known that, on average, women live longer than men. However, in people who have type 1, both men and women have similar lifespans. This means that the effect of type 1 diabetes on lifespan is more pronounced in women than in men ­– this is where the Mail’s 40 per cent statistic comes from. The effect on women is 40 per cent bigger than the effect on men, which amounts to both men and women living a similar amount of time.

The same is true for the other statistics – women tend have lower rates of cardiovascular disease and stroke than men, so if type 1 puts both genders at a similar level, then the effect of having the condition is much bigger for women. They are not, as the Mail suggests, 37 per cent more likely to die of a stroke than men; it is that the effect for women is 37 per cent greater.

In addition, the overall effect of type 1 diabetes upon mortality is getting less and less every year. Last month, we reported a study that showed that people with type 1 are living longer than ever before, and we are funding numerous projects such as AdDIT to combat the threat of complications.

Despite this, both the Mail article and the Lancet study highlight an important point – women with type 1 are being more strongly affected by the condition than men, and we need to address this discrepancy. Studies have found that women have slightly higher HbA1c levels over their lifetimes, and as long-term hyperglycaemia raises the risk of complications, this could contribute to the difference.

Better treatments to support glucose management – including smart insulins and the artificial pancreas – would go a long way towards reducing the impact of type 1 on everyone.

Sarah Johnson, Director of Policy and Communications at JDRF, said: ‘We know that research has shown young girls and women with the condition are more likely to have poorer blood glucose control than their male counterparts. Whatever the reasons are behind that, what’s certain is that every single early death linked to type 1 diabetes is unacceptable.’

She added: 'One day, the cure will be found. To get there, we need research to be better supported.'