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Find out the latest news about JDRF's research and fundraising events.

Displaying awareness

01
Mar

Type 1 Parliament in the news

With JDRF’s flagship lobbying event Type 1 Parliament quickly approaching, we’re delighted to see many of you have been working hard to get type 1 mentioned in the media. Congratulations and thank you to all of you who have contacted the media and achieved coverage so far.

Alex Newman received excellent coverage, pictured alongside his MP Tony Baldry, in the Banbury Guardian: http://www.banburyguardian.co.uk/news/local/alex_nine_set_to_speak_to_parliament_about_diabetes_1_3506132

Emma Bailey was featured in The News in Portsmouth: 
http://www.portsmouth.co.uk/news/health/local-health/leigh_park_youngsters_diabetes_funding_row_goes_to_parliament_1_3575015

Kaye Sparrow gained coverage in the Wigan Evening Post:
http://www.wigantoday.net/news/local-news/brave_kaye_heads_to_parliament_1_4297594

While Lily Devereux appeared on page 8 in South East London magazine, The Transmitter:
http://issuu.com/thetransmitter/docs/thetransmitterissue22

As well as the online coverage, there have been some great print pieces in newspapers. Oliver Lack received brilliant coverage in the Richmond and Twickenham Times, with Oliver pictured alongside his MP Zac Goldsmith; Gracie Spandler featured in the Wharfedale & Aireborough Observer; Emily appeared with her Mum, Laura and sister, Katie in the Salisbury Journal; Danielle Sellers gained coverage in the Yorkshire Evening Post; brother and sister Jack and Chloe Gillum featured in the Shropshire Star; Danielle Sellers appeared alongside her children Elizabeth and James in the Wetherby Boston Spa & Tadcaster News; while George Dove gained coverage in the Mansfield Chad, in addition to many more of you.

Thank you to all of you for your fantastic work in attracting media attention and in raising awareness of type 1 diabetes and our lobbying day. If you have not already been successful at contacting your local media, then please do spread the word by telling your local newspaper, radio or television station about the day.

Even if you’re not coming along to Type 1 Parliament, you can still get involved. This event offers an invaluable opportunity to raise awareness of type 1 and the need for greater investment in research. This is a great chance to contact your local media and share your experiences of living with type 1 diabetes.

If you need any help or have any questions, please do not hesitate to contact the communications team on 0207 713 2030/comms@jdrf.org.uk. Good luck!

28
Feb

JDRF supports DWED during National Eating Disorders Awareness Week

JDRF is pleased to support Diabetics with Eating Disorders (DWED) during National Eating Disorders Week. DWED is a charity supporting young men and women suffering from diabetes related eating disorders.

DWED aims to address the prevalence of eating disorders in people with type 1 diabetes, supporting people with the condition who deliberately manipulate their insulin in a bid to lose weight. Developing an eating disorder when you have type 1 diabetes is dangerous and can lead young men and women across the UK to experience the devastating complications of blindness and limb amputation. Unfortunately, it can be fatal. Alarmingly, the prevalence of eating disorders in people with type 1 is increasing.

Recent research shows that females with type 1 diabetes are at twice the risk of developing anorexia or bulimia, and as many as 40% of 15-30 year olds regularly don’t inject with insulin. Although less common in males, men with type 1 are also at risk of developing eating disorders. DWED exists to support, increase awareness and improve access to appropriate treatment for those who are affected by diabetes related eating disorders, and encourage eating disorders in people with diabetes to be recognised as a diagnosable mental disorder. 

08
Feb

Royal interest in type 1 diabetes

Today is an historic moment for JDRF. For the first time ever, we welcomed a member of the royal family to learn about JDRF's research into finding the cure for type 1. HRH Duchess of Cornwall visited the Cambridge Wellcome Trust clinical research facility just after noon today to learn more about type 1 research and to speak to celebrities and young people living with type 1 who have been involved with clinical trials. She met with researchers from the University of Cambridge who are working on developing the Artificial Pancreas and preventing type 1 diabetes and its complications.

HRH spent time with Jeremy Irvine, star of Steven Spielberg’s film, Warhorse who has type 1 diabetes and took part in artificial pancreas trials in 2005 and 2007. He explained how technology helps him manage his type 1 with a hectic filming career.

She also talked to BBC Radio 4 Today Programme presenter Justin Webb and his son Sam who has type 1 diabetes, and discussed the family’s hope for the cure.

The Duchess of Cornwall learned about two JDRF-funded trials. The Artificial Pancreas Project and The Adolescent Type 1 Diabetes Cardio-Renal Intervention Trial (AdDIT).

During the visit, Professor Dunger announced that 3,000 young people have now been screened across three continents as part of this international clinical trial, which is exploring ways to prevent the complications of type 1 diabetes.

Her Royal Highness met Dr Tim Tree and talked about D-GAP, Diabetes – Genes, Autoimmunity and Prevention project, which is exploring the causes and triggers of type 1 diabetes in people affected by the condition.

This visit was a chance for Her Royal Highness to decide how she might like to be associated with JDRF in the future. We are delighted to have had this opportunity to meet her, and look forward to seeing how a relationship might develop with HRH in the future.

Photography by Dominic Clemence

08
Feb

Type 1 support group in Wolverhampton

New type 1 diabetes support group set up in Wolverhampton

A new type 1 diabetes support group has been set up in Wolverhampton by two local mums. The T1 support group is open to anyone who has a child with type 1 diabetes or has type 1 diabetes themselves, and either attends New Cross Hospital or lives near to it and attends a local hospital.

The aim of the group is to connect families together to help provide a support network and hopefully raise money for JDRF!

Join their Facebook group page or contact Hannah at JDRF on hgripton@jdrf.org.uk or 0121 685 7102 for further details.

30
Jan

Simfest

Simfest raises hundreds for type 1 diabetes research

Simfest, a music event organised by Danny Simm and his teenage friends, has managed to raise over £400 for JDRF and type 1 diabetes research. It was held at Fuzzbox Studios in Wigan with local bands like Levelled, Skive and Junction23 performing.

Danny said, ‘It was a fantastic event. We had some great bands performing.  Loor a los heroes went down a storm, Smitten Kitten blew everyone away and The Relays wrapped it up in style. To raise money on the day we shaved Mad Dog Maiden’s hair and raffled off a guitar, photoshoot and vouchers.

‘I decided to put on the event because friends of mine and my grandad have to live their lives with type 1 diabetes. This has alerted me to the struggle that they deal with on a daily day basis. It made me want to help and feel that I am doing something.’ 

One of Danny’s friends Harry Baxendale said, ‘I was diagnosed with type 1 diabetes when I was two and a half and living with type 1 diabetes can, at times, be a pain. But it doesn’t control me. I control it! It means a lot to me that Danny has organised this event to raise awareness and vital funds for JDRF, and it gave the band and me a wonderful opportunity to play to a packed crowd too.’

Danny said, ‘I just want to thank everyone who played, donated a prize and money. Next year we will be back with an even bigger event.’ 

(Pictured left to right: Josh Hindle, Harry Baxendale, Danny Simm, Sam Millar, Paul Mad Dog Maiden)

27
Jan

Sanofi break world record for JDRF

Pharmaceutical company Sanofi got their staff dancing in time this month to raise money for research into type 1. As a corporate partner of JDRF, Sanofi wanted to get their sales teams involved in fundraising for us and managed to get recognised by Guinness World Records at the same time.

On Wednesday 18 January at a company meeting in Wales, Sanofi staff attempted to break five Guinness world records. They were successful with one, setting a new record for the most people to be dancing the ‘big fish, little fish, cardboard box’ dance at any one time!

Thank you to Sanofi for raising £455.73 during their record attempts, and for staff who joined in and danced for JDRF!

In the picture: From left to right Samantha Imbimbo JDRF Fundraising Manager Wales, Becky Reeve Head of Professional Relations Sanofi Diabetes, Caroline Horwood Divisional Director for Diabetes Sanofi UK & ROI, Guinness World Records officials


26
Jan

Member of the Royal Family recognises JDRF research

We are delighted and excited to let you know that Her Royal Highness The Duchess of Cornwall will visit The Cambridge Wellcome Trust Clinical Research Facility at Addenbrooke’s Hospital in February to learn more about the work of JDRF. She will meet with researchers who are working to prevent type 1 diabetes and its complications, as well as speaking to children with type 1 who have been involved with clinical trials.

Her Royal Highness will be welcomed by HM Vice Lord-Lieutenant of Cambridgeshire, Mrs Jane Lewin Smith JP, before touring the facility with Karen Addington, Chief Executive at JDRF, and Professor David Dunger, of The University of Cambridge.

The Duchess of Cornwall will also meet with Dr Roman Hovorka and Dr Tim Tree to learn about their JDRF funded research.  Dr Hovorka is working to develop a Closed Loop Artificial Pancreas whilst Dr Tree will be discussing the Diabetes Genes, Autoimmunity and Prevention (DGAP) Project. 

This visit will be a chance for Her Royal Highness to decide how she might like to be associated with JDRF in the future. We are delighted to have this opportunity to meet with her as she only works with charities that she has personally selected, and look forward to telling you more about the visit at a later date.

17
Jan

Amelia Lily talks type 1 with JDRF!

Today, JDRF spoke with X Factor star and singer Amelia Lily about living with type 1 diabetes, being in the spotlight and her career plans for the future. Amelia chatted to JDRF’s in house journalist Lucy Freeman whilst on her way to perform at a gig.

The interview will be featured in our Winter edition of our quarterly magazine, Type 1 Discovery, which is due to come out at the end of January.  If you want to read the latest news from Amelia, and you aren’t already a friend of JDRF, why not sign up here

As a Friend of JDRF you'll receive Type 1 Discovery. It's packed with all the latest research news plus features on living with type 1 diabetes. You'll also receive invites to our Type 1 Discovery Days, special updates by email and the chance to apply to come and meet some of our researchers. All for £5 a month. Most importantly, by becoming a Friend of JDRF you will be helping us to support vital research into type 1 diabetes.

09
Jan

Inspiring in 2012

JDRF recently met Phil Packer MBE, Non-Paid Chief Executive and founder of The British Inspiration Trust, a charity working to inspire and support young people who are facing challenges and adversity in their lives.

In setting up the organisation, Phil wants to help others who have had to overcome obstacles or who are learning to live with adversity to succeed. He met staff at JDRF to find out more about type 1 diabetes and to learn about how young people in the UK are affected by the condition and why we are working to find the cure.

Karen Addington and other staff members explained what day to day life with type 1 diabetes is like, describing how life is a constant balancing act for someone with the condition and explaining how it also affects families. 

Phil talked us through his plans to build a BRIT Centre of Inspiration, where young people who face adversity, who are identified by their charities, can attend residential courses and meet inspirational figures and be inspired to get what they want from life. With mentors such as Sir Ranulph Fiennes and Sir Richard Branson already supporting Phil’s vision, the project is set to be a fantastic success and so JDRF was delighted to be asked to become a BRIT advisor, supporting the programme and working to help Phil in his mission to inspire young people.

You can read more about BRIT and the work Phil is doing here www.britishinspirationtrust.org.uk/About-Brit/vision   

Keep an eye out for ways in which BRIT and JDRF will be working together in the coming year!

06
Jan

Jeremy Irvine rises to fame in Warhorse film

As we welcome 2012, we are delighted to see JDRF supporter Jeremy Irvine in the spotlight this weekend, as the UK premier of film Warhorse is shown on the big screen in Leicester Square. Actor Jeremy, who has type 1 diabetes, takes the lead role in the film adaptation of the west end show , directed by the world famous Steven Spielberg.

Jeremy was under a different spotlight when the BBC filmed him talking about his involvement in JDRF’s Artificial Pancreas trial at the University of Cambridge in 2005 and again in 2007.

As a rising star and Hollywood actor, Jeremy is already back on set, shooting for his next film Great Expectations. Over the years, despite a busy schedule as his acting career has taken off, Jeremy has spoken at many JDRF events, showing his support of our search for the cure for type 1 diabetes.

Jeremy said: "Without the research funded by JDRF I don't believe I would be able to have the career I'm enjoying now. Thanks to the huge developments being made in the treatment of type 1 diabetes no child should have to feel diabetes needs to stop them following their aspirations."

If you want to see him in action, you will be able to watch Jeremy’s debut performance on screen at local cinemas from next Monday. Keep an eye on our website for news of how we will be working with Jeremy in the coming year to raise awareness of type 1 diabetes.

14
Dec

Christmas fundraising

Christmas fundraising in Norton Village

People travelled form far and wide to attend this exceptional Christmas Fair, which was held in Norton Village Hall, Kent and saw hundreds of people attend throughout the day.

Father Christmas arrived by tinsel covered horse and carriage to open the much anticipated event and was received with cheers by villagers young and old alike. 

As well as Father Christmas making an appearance, villagers were treated to a wide variety of stalls, beautiful refreshments, face painting, and tombola. There was even a raffle to win meat ready for Christmas Day!

The event was organised by Jude Childs whose four year old granddaughter Gabriella was diagnosed with type 1 diabetes earlier in the year.

Jude said ‘I was so touched to see so many people come along to support the fundraiser. It meant the world to know that people are as passionate as we are to find the cure for type 1 diabetes’. 

In total the fair has raised over £5,000 for type 1 diabetes research – an absolutely fantastic amount!

Thank you to Jude and Gabriella for your hard work and to everyone who was involved in making the Norton Village Fair a resounding success!

05
Dec

Vote for Amelia Lily to win the X Factor!

Last week Amelia Lily made it through to the final of the X Factor. The 17 year old has spoken publicly about her experience of living with type 1 diabetes. Many of you have been in touch to let us know the singer has been an inspiration, proving that type 1 diabetes need not stop you fulfilling your dreams.

Amelia tweeted "Guys can't even thank you all enough for voting for me! I'm so grateful, can't believe I'm In the final of TXF!"

JDRF has been backing Amelia since the early stages of the show and we wish her all the best for the final. We know she'll go on to do great things and look forward to following her career post X Factor, but would love for her to win!

If you do tune in to the show on Saturday, please support Amelia by picking up the phone to vote for her to win. Telephone voting numbers will be available on The X Factor homepage when the vote opens on Saturday night.There won't be the chance to text vote in the final.

01
Dec

Christmas lights

Type 1 Youth Ambassador gets into festive spirit of fundraising

JDRF Type 1 Youth Ambassador, Karl Beetson from Northamptonshire, is raising awareness about type 1 diabetes, and funds for JDRF this Christmas by lighting up his house.

Karl and his family have decorated the front of their house and are asking for donations to JDRF from visitors who are coming to view their Christmas-tastic display! 

From 24th November until 31st December the public can come to the Beetson's house and view the festive show that has already raised over £450 for JDRF and the type 1 diabetes research we fund.

For more information please visit Karl's website

24
Nov

Flu jab for people with type 1 diabetes

If you have type 1 diabetes, there is still time to contact your GP to get your free flu jab.

The NHS has once again launched the seasonal flu vaccination programme for groups that are at particular risk, including those with type 1 diabetes.

For most people, flu is unpleasant but not serious, and recovery is quick. However, to be safe, the vaccine is offered free to pregnant women and anyone with certain medical conditions including type 1 diabetes.

Recent figures from the government show that many individuals eligible for the free vaccine are yet to take up the offer.

Dr Richard Pebody, head of flu surveillance at the HPA said: “If you are in one of the clinical at risk groups, you still have time to get vaccinated this season. Seasonal flu can be very serious and results in between two and five thousand excess deaths each year. Please ensure you take up the offer as soon as possible to reduce your risk of serious complications from flu.”

For more information visit the NHS website

23
Nov

World Diabetes Day

Getting Sorted self-care workshops

'Getting Sorted: Our Way' is a self-care programme for young people aged 12-17 with type 1 diabetes. The unique programme has been developed ‘by young people for young people’ to meet the needs of 12-17 year olds and enable them to manage their condition.

‘Getting Sorted’ sets out to engage young people at every stage of their development. At the centre of the project, young facilitators with type 1 diabetes deliver a sequence of five informative, fun and interactive workshops. These are designed to help young people increase their understanding of the disease, self-manage their diabetes, and thereby reduce the risk of long-term complications.

The 'Getting Sorted' workshops are delivered by trained young facilitators who themselves have a long-term health condition. The workshops focus on the impact the condition has on a young person's life based on the three key principles of:

Self-efficacy: young people should be encouraged to take responsibility for their lives and their condition.

Empowerment: young people should be enabled to develop knowledge, skills, understanding and motivation in relation to their condition. 


Engagement: young people should be fully engaged in the process of managing their condition in a pro-active way.

The workshops are being delivered throughout the Yorkshire and Humber region. To find out more, please contact Lorna Galdas on 07769 239594 or email gettingsorted@leedsmet.ac.uk

18
Nov

World Diabetes Day

St Robert Southwell RC Primary School raises money for World Diabetes Day

On World Diabetes Day, pupils from St Robert Southwell RC Primary School in Slough Lane, Kingsbury paid £1 to wear blue clothes in support of JDRF and raised £300. The school’s fundraising events, which will help support vital type 1 diabetes research, were also reported by the local paper. 

We would like to thank the pupils and staff from St Robert Southwell RC Primary School for raising money for JDRF.

14
Nov

JDRF announces Type 1 Parliament 2012 Delegates and Co-Chairs on World Diabetes Day

On 25 April 2012, JDRF will hold its first ever Type 1 Parliament, a lobbying event at the Houses of Parliament where children and adults will ask the Government to work with JDRF and increase investment in research to cure, treat and prevent type 1 diabetes.

We have been overwhelmed by the staggering response to our invitation to apply to attend, and wanted to let everyone who has entered know that they should have received a letter confirming whether or not they have a place at the event. We also want to say a massive thank you to everyone who continues to work so hard to support our mission to cure type 1 diabetes and to encourage everyone to get involved with raising awareness in the run up to Type 1 Parliament.

Over 200 people applied for the 60 available places, and judges Adrian Sanders MP, Caroline Horwood, Diabetes Division Director at Healthcare company Sanofi and JDRF Chief Executive Karen Addington met in Parliament for the almost impossible task of selecting the 2012 delegates. We’d like to say thank you to Adrian, Caroline, Platinum Sponsors Sanofi, and also to Philip Dunn MP and Caroline Noakes MP, for their support of Type 1 Parliament.

Co-Chairs
Thirteen-year-old George Dove from Mansfield, Nottinghamshire has been chosen as Co-Chair of the lobbying event. George works tirelessly to spread the word about what it’s like living with type 1 diabetes. He was recently named Nottingham’s Young Person of the Year and since becoming involved with the charity has raised a staggering £35,000 to support research into the condition. Having spoken publicly about living with type 1 diabetes and why he supports JDRF in his mission to find the cure, George is well equipped to co-chair the type 1 Parliament event.

Sixteen year old Amy Wilton from Fareham, Hampshire will join George as Co-Chair of the event. Amy is a T1 Youth Ambassador who has represented JDRF by speaking at many of the charity's events including research Discovery Days and Walks to Cure Diabetes. Amy’s family does the Walk to Cure Diabetes each year too. Her mother Carole also plucked up the courage and participated in a sponsored sky dive with a friend to raise money to support JDRF’s vital research into finding the cure. Finally, in 2009 Amy travelled to Washington DC to be part of JDRF’s US Children’s Congress as the UK delegate.

Whether or not you are attending Type 1 Parliament, there is a lot that you can do to put type 1 diabetes research on the political map! Click here to see how you can get involved.

01
Nov

JDRF International declares 1 November T1Day

The day will mark a month of fundraising and awareness raising activities, and is aimed to make sure that issues surrounding type 1 are not lost amongst general ‘diabetes’ messages. JDRF affiliates around the world will be coming together to mark this day and encourage supporters like you to get involved throughout November. Here in the UK we want you to GO BIG, go bold and Go Blue.

GO BIG
How did you get involved last year? Can you top it? We want to make an even bigger noise and raise more funds for research than ever before.

Go Bold
Will you help us raise awareness of type 1 diabetes this month? We’ll be posting 30 finds for 30 days online to highlight a different JDRF research project each day. Help spread the word by posting them on your social networking profile. And if you have a bit more time, why not get involved with the 1 Campaign.

Go Blue
Supporters from around the UK will be helping raise funds throughout November by Going Blue in a variety of ways. It’s not too late to get involved, order your free fundraising guide here.

T1Day is the start of a month packed with activities. So whether you raise awareness, Go Blue or come along to one of our Type 1 Discovery Days you’ll be helping put type 1 on the map this November.

Katy Pickering, Head of Donor Development, said, ‘November is one of our most important months for raising funds and awareness. Many supporters have already been in touch to let us know about the activities they are planning. T1Day is a great way to kick off the month and draw attention to type 1 issues.’

27
Oct

Behind the headlines: Diabetes rises by 50% in five years fuelled by soaring levels of obesity

This morning The Daily Mail and The Guardian reported that the number of people being diagnosed with type 2 diabetes has increased by fifty percent in the last five years due to rising levels of obesity in the UK.

Whilst reporting on the growing number of adults being diagnosed with type 2, the article said that more children than ever are being diagnosed with the condition, whereas in the past it was usually only seen in adults. Figures suggest up to 1,400 children now have type 2 diabetes. These figures are cause for serious concern, but it should also be noted that incidence of type 1 diabetes is rising by 4% year on year, and faster in children under the age of five. In fact, there are over 26,000 children in the UK currently living with type 1 diabetes. With such a high number of young people being diagnosed with the condition, we feel its important to recognise the impact type 1 is having on the young population of Britain.

Although there is a government and media focus on the obesity agenda, JDRF is committed to keeping attention on type 1 diabetes, presenting the facts about the autoimmune condition, highlighting that it isn’t caused by lifestyle factors such as diet and exercise as type 2 diabetes can sometimes be.

You may have heard about the Type 1 Parliament event we are planning for April 2012. JDRF is giving 60 adults and children with type 1 the chance to have their say about the issues and challenges they face to MPs and government officials at Westminster. If you’re passionate about making a difference and want to raise awareness of the condition, why not get involved by applying to attend. The competition closes at midnight on Monday 31 October, so be sure to get your entry in before then. You can apply here 

20
Oct

Type 1 fundraiser nominated for award

Type 1 diabetes fundraiser nominated for Champion Award

Well done to Neil McDonald for his nomination in this year's Evening Express Aberdeen's Champion Awards. We are delighted that the tremendous effort he has put into his ‘Climb for a Cure’ campaign has been recognised in the charity section. So far the campaign has raised £106,000 in aid of JDRF and the type 1 diabetes research we fund. Good luck Neil!

Please support Neil and vote for him by calling 0901 736 2734 and voting for 017 or texting EE Champion 017 to 83070. See local press for text charges. Lines close midnight on Sunday 23rd October.