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Find out the latest news about JDRF's research and fundraising events.

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#TypeOnesie in your child's clinic

The #TypeOnesie campaign is spreading throughout schools, homes and businesses nationwide – and now it’s coming to your child’s clinic.

Insulin pump manufacturer Animas and glucose monitoring product manufacturer LifeScan are showing support by placing lifesize #TypeOnesie cutouts within paediatric diabetes clinics, enabling children to pose behind them and have a fun photo taken.

If they want, proud parents can post a photo onto social media with the hashtag #TypeOnesie, and then make a donation to support JDRF’s global type 1 diabetes research programme. They can give by texting “JDRF10 £5” to 70070.

Becky Rawle, Senior Corporate Development Fundraiser at JDRF, said: “We’re delighted that Animas and LifeScan are backing our charity #TypeOnesie campaign, which raises vital funds to help us better treat, prevent and eventually cure type 1 diabetes.”


Type 1 Parliament – A fantastic success…

JDRF are delighted to report that our inaugural mass lobbying event, Type 1 Parliament, was extremely well received by all at Westminster. Over 50 MPs attended our morning event in Parliament and talked to supporters and delegates about the realities of living with type 1 diabetes. JDRF delegates put their messages across incredibly effectively and articulately, and communicated passionately the facts of type 1 diabetes.

MPs commented on the day and have been in touch with JDRF, stating how much they enjoyed the event and meeting with delegates. They have told us they were overwhelmed by all the children and adults they met with and thought they were fantastic ambassadors for the charity. There was a real buzz around the event and we truly succeeded in educating politicians about type 1 diabetes and raising type 1 diabetes up the political agenda.

JDRF will be working hard to build upon the momentum of this day and to continue to effectively work with these MPs in the future. We will be in later next week, with details of our next steps forward and how you can help us to take these relationships forward.

The media have also been keen to pick up on the event, with well over 350 pieces of national, local and online media mentioning JDRF and type 1 diabetes. Karen Addington, Chief Executive of JDRF, was interviewed on the BBC Radio 4 programme You and Yours talking about type 1 diabetes.

Our afternoon Question Time event was also a brilliantly received, with many thought-provoking and passionate questions receiving interesting and evocative responses from our panellists. In particular, it was a great opportunity for the Rt Hon. David Willets, the Minister responsible for Universities and Science, to hear the direct case for greater investment into type 1 research.

JDRF extends our thanks to all involved in Type 1 Parliament for making it such a worthwhile, enjoyable and productive day. We will now continue to work hard and build upon the success of the event.

You can view photos from the day on our Flickr account:


Amelia Lily talks type 1 with JDRF!

Today, JDRF spoke with X Factor star and singer Amelia Lily about living with type 1 diabetes, being in the spotlight and her career plans for the future. Amelia chatted to JDRF’s in house journalist Lucy Freeman whilst on her way to perform at a gig.

The interview will be featured in our Winter edition of our quarterly magazine, Type 1 Discovery, which is due to come out at the end of January.  If you want to read the latest news from Amelia, and you aren’t already a friend of JDRF, why not sign up here

As a Friend of JDRF you'll receive Type 1 Discovery. It's packed with all the latest research news plus features on living with type 1 diabetes. You'll also receive invites to our Type 1 Discovery Days, special updates by email and the chance to apply to come and meet some of our researchers. All for £5 a month. Most importantly, by becoming a Friend of JDRF you will be helping us to support vital research into type 1 diabetes.


Jeremy Irvine rises to fame in Warhorse film

As we welcome 2012, we are delighted to see JDRF supporter Jeremy Irvine in the spotlight this weekend, as the UK premier of film Warhorse is shown on the big screen in Leicester Square. Actor Jeremy, who has type 1 diabetes, takes the lead role in the film adaptation of the west end show , directed by the world famous Steven Spielberg.

Jeremy was under a different spotlight when the BBC filmed him talking about his involvement in JDRF’s Artificial Pancreas trial at the University of Cambridge in 2005 and again in 2007.

As a rising star and Hollywood actor, Jeremy is already back on set, shooting for his next film Great Expectations. Over the years, despite a busy schedule as his acting career has taken off, Jeremy has spoken at many JDRF events, showing his support of our search for the cure for type 1 diabetes.

Jeremy said: "Without the research funded by JDRF I don't believe I would be able to have the career I'm enjoying now. Thanks to the huge developments being made in the treatment of type 1 diabetes no child should have to feel diabetes needs to stop them following their aspirations."

If you want to see him in action, you will be able to watch Jeremy’s debut performance on screen at local cinemas from next Monday. Keep an eye on our website for news of how we will be working with Jeremy in the coming year to raise awareness of type 1 diabetes.


NICE dismiss joint appeal for Lucentis

Last week we were disappointed to learn that NICE dismissed our joint appeal encouraging them to reconsider their decision not to recommend Lucentis for the treatment of Diabetic Macular Oedema through the NHS. Working together with Diabetes UK, the Macular Disease Society (MDS) and the Royal National Institute of Blind People (RNIB) we have been campaigning for the potentially sight-saving drug to be made available for people with diabetic macular oedema (DMO) after NICE initially turned down an appeal for it to be used on the NHS.

At least 50,000 people in the UK are affected by DMO.Traditionally, laser treatment has been the standard treatment for the condition on the NHS, yet this only stops vision from deteriorating further. Lucentis, given in the form of an injection in the eye, however, is the first licensed treatment to improve vision in people with sight loss due to DMO.

Together with the other three charities, we are now urging the manufacturer of Lucentis, Novartis, to rapidly develop a Patient Access Scheme with the Department of Health and NICE in order to reduce the cost of this treatment to the NHS and ensure the maximum number of people with DMO can benefit from the treatment without delay.


Vote for Amelia Lily to win the X Factor!

Last week Amelia Lily made it through to the final of the X Factor. The 17 year old has spoken publicly about her experience of living with type 1 diabetes. Many of you have been in touch to let us know the singer has been an inspiration, proving that type 1 diabetes need not stop you fulfilling your dreams.

Amelia tweeted "Guys can't even thank you all enough for voting for me! I'm so grateful, can't believe I'm In the final of TXF!"

JDRF has been backing Amelia since the early stages of the show and we wish her all the best for the final. We know she'll go on to do great things and look forward to following her career post X Factor, but would love for her to win!

If you do tune in to the show on Saturday, please support Amelia by picking up the phone to vote for her to win. Telephone voting numbers will be available on The X Factor homepage when the vote opens on Saturday night.There won't be the chance to text vote in the final.


World Diabetes Day

Getting Sorted self-care workshops

'Getting Sorted: Our Way' is a self-care programme for young people aged 12-17 with type 1 diabetes. The unique programme has been developed ‘by young people for young people’ to meet the needs of 12-17 year olds and enable them to manage their condition.

‘Getting Sorted’ sets out to engage young people at every stage of their development. At the centre of the project, young facilitators with type 1 diabetes deliver a sequence of five informative, fun and interactive workshops. These are designed to help young people increase their understanding of the disease, self-manage their diabetes, and thereby reduce the risk of long-term complications.

The 'Getting Sorted' workshops are delivered by trained young facilitators who themselves have a long-term health condition. The workshops focus on the impact the condition has on a young person's life based on the three key principles of:

Self-efficacy: young people should be encouraged to take responsibility for their lives and their condition.

Empowerment: young people should be enabled to develop knowledge, skills, understanding and motivation in relation to their condition. 

Engagement: young people should be fully engaged in the process of managing their condition in a pro-active way.

The workshops are being delivered throughout the Yorkshire and Humber region. To find out more, please contact Lorna Galdas on 07769 239594 or email [email protected]


JDRF announces Type 1 Parliament 2012 Delegates and Co-Chairs on World Diabetes Day

On 25 April 2012, JDRF will hold its first ever Type 1 Parliament, a lobbying event at the Houses of Parliament where children and adults will ask the Government to work with JDRF and increase investment in research to cure, treat and prevent type 1 diabetes.

We have been overwhelmed by the staggering response to our invitation to apply to attend, and wanted to let everyone who has entered know that they should have received a letter confirming whether or not they have a place at the event. We also want to say a massive thank you to everyone who continues to work so hard to support our mission to cure type 1 diabetes and to encourage everyone to get involved with raising awareness in the run up to Type 1 Parliament.

Over 200 people applied for the 60 available places, and judges Adrian Sanders MP, Caroline Horwood, Diabetes Division Director at Healthcare company Sanofi and JDRF Chief Executive Karen Addington met in Parliament for the almost impossible task of selecting the 2012 delegates. We’d like to say thank you to Adrian, Caroline, Platinum Sponsors Sanofi, and also to Philip Dunn MP and Caroline Noakes MP, for their support of Type 1 Parliament.

Thirteen-year-old George Dove from Mansfield, Nottinghamshire has been chosen as Co-Chair of the lobbying event. George works tirelessly to spread the word about what it’s like living with type 1 diabetes. He was recently named Nottingham’s Young Person of the Year and since becoming involved with the charity has raised a staggering £35,000 to support research into the condition. Having spoken publicly about living with type 1 diabetes and why he supports JDRF in his mission to find the cure, George is well equipped to co-chair the type 1 Parliament event.

Sixteen year old Amy Wilton from Fareham, Hampshire will join George as Co-Chair of the event. Amy is a T1 Youth Ambassador who has represented JDRF by speaking at many of the charity's events including research Discovery Days and Walks to Cure Diabetes. Amy’s family does the Walk to Cure Diabetes each year too. Her mother Carole also plucked up the courage and participated in a sponsored sky dive with a friend to raise money to support JDRF’s vital research into finding the cure. Finally, in 2009 Amy travelled to Washington DC to be part of JDRF’s US Children’s Congress as the UK delegate.

Whether or not you are attending Type 1 Parliament, there is a lot that you can do to put type 1 diabetes research on the political map! Click here to see how you can get involved.


Type 1 fundraiser nominated for award

Type 1 diabetes fundraiser nominated for Champion Award

Well done to Neil McDonald for his nomination in this year's Evening Express Aberdeen's Champion Awards. We are delighted that the tremendous effort he has put into his ‘Climb for a Cure’ campaign has been recognised in the charity section. So far the campaign has raised £106,000 in aid of JDRF and the type 1 diabetes research we fund. Good luck Neil!

Please support Neil and vote for him by calling 0901 736 2734 and voting for 017 or texting EE Champion 017 to 83070. See local press for text charges. Lines close midnight on Sunday 23rd October.


RBS bake sale

Bake sale at RBS raises funds for type 1 diabetes research

The Credit Review team from the Royal Bank of Scotland have recently raised an impressive £460 for JDRF. They achieved this by holding a very tasty bake sale that had rice crispy, corn flake, and butterfly cakes on the menu. They also held a raffle and carried out a sponsored silence, with one member of the team managing to stay silent for an amazing eight hours.

JDRF would like to thank the Credit Review team for their support of JDRF and the type 1 diabetes research we fund. Our only disappointment is that we missed out on their delicious bake sale!


Checklist of 15 ‘must have’ services for people with type 1 to stay healthy, launched by Diabetes UK

In response to recent figures showing a gap in the care people with type 1 diabetes are receiving, Diabetes UK has sent out a call encouraging people with type 1 to make sure they are receiving appropriate care and the best treatments available to protect themselves from developing the complications of the condition in the future.

As part of the 15 checks, the charity highlighted the importance for people with type 1 to get their vision checked annually using retinal screening, to ensure they don’t develop diabetic retinopathy. They also encouraged people to have their kidney functions monitored, to request specific care plans that are tailored to individuals needs, to get their legs and feet checked and also to get emotional and psychological support.

We fully support Diabetes UK’s campaign to ensure people with the condition have access to the care services they require, whilst we fund research to develop better treatments, prevent complications and ultimately find the cure. The work they do in encouraging people with type 1 diabetes to keep healthy is vital. 

Visit our website, to learn more about the research we are doing to understand and prevent the complications of type 1 diabetes. 


JDRF T1 Youth Ambassador wins Nottinghamshire Young People of the Year awards

We are delighted that one of our T1 Youth Ambassadors, George Dove, has been chosen as Junior Winner of the Nottinghamshire Police & Fire Young People of the Year award for his work raising awareness of type 1 diabetes and fundraising for JDRF.

George found out the good news at the awards ceremony last Thursday. The winner gets £125 for their cause and George has kindly chosen to donate this to JDRF.

13 year old George Dove is passionate about raising awareness of type 1. Even at his young age, he campaigns for the Government to invest more money into medical research and spreads the word about improving access to insulin pumps. He has done various radio interviews, delivered speeches about what its like to live with the condition to large audiences, organised his very own Walk to Cure Diabetes locally and to date has raised more than £30,000 for JDRF.


NICE decide Lucentis is not an effective use of NHS resources

A new treatment for visual impairment caused by diabetic macular oedema (DMO) has this week been added to the list of medicines that are not considered an ‘effective use of NHS resources’. NICE has concluded that it does not recommend Lucentis® (ranibizumab) for use within the NHS in England and Wales for the treatment of visual impairment due to Diabetic Macular Oedema (DMO).

JDRF believes it is vital that patients with diabetic macular oedema receive safe and effective treatments for their condition. This is why we supported the early development of Lucentis through our Innovative Grant programme. Further collaboration with Genentech, a biotech company based in San Francisco, and Johns Hopkins Medical School, enabled clinical research to help reveal the full therapeutic benefit of the drug for people with type 1 diabetes.

DMO is caused by swelling in the centre of the retina – the light-sensitive area at the back of the eye that provides detailed vision. The swelling results from damage to small blood vessels caused by years of elevated blood sugar levels, which –even with the best possible treatment – are hard to avoid entirely when living with type 1 diabetes.

The standard treatment for DMO has been the same for the last 25 years – laser treatment to destroy areas of abnormal blood vessel growth at the back of the eye. However this treatment does not improve vision, it only slows the progression of the condition.

Therefore the decision by the National Institute for Health and Clinical Excellence (NICE) to not recommend the drug ranibizumab (marketed as Lucentis) for use within the NHS to treat DMO is disappointing. Current research indicates that ranibizumab is highly effective in treating DMO and, significantly, that it meets an unmet need for patients who do not respond well to the current standard laser treatment.

Lucentis has been approved in the USA for the treatment of DMO, and is also approved in Europe for treating another eye condition, wet age-related macular degeneration. The fact that ranibizumab has not been NICE approved for the treatment of visual impairment caused by diabetic macular oedema means that clinicians may be forced to turn to unlicensed and therefore untested alternatives, putting patients’ sight at risk. 

If left untreated, diabetic macular oedema can lead to vision loss. The condition affects approximately 28% of people who have had diabetes for at least 20 years. The standard treatment of this condition has been the same for the last 25 years – laser treatment to destroy areas of abnormal blood vessel growth at the back of the eye. However, despite reducing the progression of the condition, this treatment does not improve vision.

JDRF campaigns to raise awareness of type 1 diabetes, informing key decision makers about the issues people living with the condition face. If you haven't already, get involved with JDRF's 1 Campaign. Together we can lobby the Government to invest more money in medical research and to improve access to treatments. 


Doctors get in goal for World Medical Football Championships

The 17th World Medical Football Championships will take place on 23-30 July 2011 at the Midlands Hotel in Manchester. The event gives doctors from all over the world a chance to compete against each other in a football tournament whilst also attending the international World Medical Health Conference on Health and Medicine in Sport.

Over 400 medics will compete on the pitch to win the Ferran Morell trophy and be crowned as champions.

Since the event began, the competition has been hosted in Germany, Australia, Lithuania, South Korea and Austria. This year the tournament will be hosted by the British Medical Team in Manchester.

The WMFC has kindly chosen JDRF to benefit from all monies raised as part of the football tournament and other related activities this year. They are hoping to raise at least £2,000 to go towards research into type 1 diabetes.

For more information regarding this year's competition you can visit the World Medical Football Federation website


William Chanter attends US Children’s Congress to make a noise about type 1 diabetes

Fourteen year old William Chanter is one of seven children from around the world who will be at JDRF’s Children’s Congress 2011 in Washington, D.C. today. T1 Youth Ambassador William, will join 150 delegates from all over the United States to convey a clear message to the U.S. government that type 1 diabetes is a global problem requiring a united effort to find better treatments and the cure for the condition.

Joining William in Washington, D.C. will be other children from Australia, Canada, Denmark, Israel, the Netherlands and Mexico.

William was diagnosed with type 1 diabetes when he was six years old. For William and his family, managing type 1 diabetes is a daily struggle to maintain a health level of blood glucose through frequent blood sugar checks and regular administration of insulin.

William’s dad, Trevor Chanter said, “William copes extremely well with this invisible condition. People see a happy, healthy looking teenager and are unaware of the effort and vigilance needed to keep healthy such as the 12500+ insulin injections he has had since diagnosis. He is a superb T1 ambassador and is eager to spread awareness of T1 and meet the US delegates in Washington DC.”

Led by International Chairman Mary Tyler Moore, JDRF’s Children’s Congress 2011 will include Congressional visits by the child delegates and a Congressional hearing where Ms. Moore, children with type 1, researchers, and business and community leaders will explain the need for continued support of funding in the U.S. for research into type 1, under the theme of “Promise to Remember Me.”

You can read more about JDRF’s public affairs work here


T1 Youth Ambassadors meet JDRF CEOs

Some of our T1 Youth Ambassadors met with Karen Addington, Chief Executive of JDRF UK, and Jeffrey Brewer, Chief Executive of JDRF International. Read Ambassador Elizabeth Sheils' account of the day:

"Last Friday I had the opportunity to go to the JDRF offices in London, I managed to see where all my friends work. I also had a peak at the stationary cupboard and spotted many Rufus bears and Pingus! It wasn’t actually the main aim of the day to snoop around the office (that was just a bonus). I was there to meet four other T1 Youth Ambassadors, Karen Addington (chief executive of JDRF UK) and Jeffrey Brewer (chief executive of JDRF International). The Youth Ambassadors had the chance to talk to Jeffrey and ask him all sorts of questions about research, type 1, and how the JDRF runs in the US. I found it was a fascinating day – I learnt lots about the research being undertaken and where it could eventually lead. It was extremely exciting thinking that there are so many ideas surrounding curing type 1 – from once a day injections to small procedures every 18 months inserting ‘protected’ insulin producing cells. Both of these would allow the person with type 1 to live almost as if they did not have type 1 at all, being able to eat without carbohydrate counting and living without the fear of hypoglycemia or hyperglycemia. Unfortunately these types of ‘cures’ are a few years down the line but it encourages me that they are being researched and pushes me to want to do more to raise awareness and money for type 1. I was also greatly inspired by the other T1 Youth Ambassadors and it was fascinating hearing about their work. I really enjoy being part of this programme!

One fact which stood out from the day was about the money used for research into type 1. In 2009, UK government funding bodies committed £51 million to research to tackle diabetes however only £6 million of this was relevant to type 1. Which is a massive contrast compared to the US who spent $150 million, the Australian government committed $36 million and Canada $20 million all on research to help cure, treat and prevent type 1 diabetes. It was shocking to learn that so little is spent on type 1 diabetes however this is also seen in the lack of people using insulin pumps (3.9%) compared to the US (35%) and Europe (15-20%). Even fewer people are using continuous blood glucose monitoring (CGMs). These facts are very concerning when you consider that one of the main pieces of research working to help remove many of the burdens of type 1 is an artificial pancreas composed of an insulin pump, a CGM an algorithm. This would provide the exact amount of insulin and at the correct time to ensure normal blood glucose levels are achieved. However if the UK currently falls behind most of the other developed countries in their uptake for insulin pumps and CGMs this will be a great problem when artificial pancreas systems are readily available. It does seem exceptionally unfair that people who live with type 1 miss out on latest treatments especially if they can make living with the condition a bit easier.

Jeffrey Brewer made an interesting point during the meeting, he said that people living with type 1 have to administer life saving (and threatening) medication everyday for the rest of their lives which definitely puts things into perspective. Type 1 cannot be seen which often leads to people completely underestimating what it is like to live with a life threatening condition. It would be wonderful to have an Artificial Pancreas and I cannot imagine how frustrating it would be if one was released onto the market and only 5% of people could use it!

As T1 Youth Ambassadors we are trying our best to make sure this doesn’t happen! If you would like to join us click here to find out more."

Elizabeth has a regular blog on our T1 Website. Click here to read more about her experience of life with type 1 diabetes.


Research highlights DKA risks

JDRF and Diabetes UK recently launched a campaign to raise awareness of the life-threatening complication of type 1 diabetes called diabetic ketoacidosis (DKA). This campaign focused on tackling the missed or delayed diagnoses of type 1 diabetes that were leading to DKA.

The campaign was prompted by a British Medical Journal articlerevealing that one in four newly diagnosed children have DKA at diagnosis of type 1, and 35% of children under the age of five go into DKA before being diagnosed. The study also showed that 30% of newly diagnosed children have had at least one related medical visit prior to diagnosis, suggesting the condition is being missed by doctors.

Research presented at Diabetes UK’s Annual Professional Conference offers further cause for concern. Dr Phil Ambery, from GlaxoSmithKline, used the UK’s General Practice Research Database (GPRD) – a collection of anonymous medical data from approximately 5 million patients – to follow the outcomes of people with type 1 diabetes hospitalised for DKA.

The study included 392 patients with a history of DKA, and found that compared to people with type 1 diabetes with no history of DKA, they were significantly more likely to have complications like retinopathy or neuropathy.

It is vital that people know the symptoms of the condition so that children can begin insulin treatment as quickly as possible and DKA can be prevented. Early symptoms of diabetes such as excessive thirst and frequent urination, especially with recent-onset of bed-wetting are signs that a child could have developed type 1 diabetes.

If you want to help raise awareness of the symptoms of type 1 diabetes, you can order one of our GP posters and ask your local surgery to display it.


Kian’s fundraising

Kian is raising awareness of type 1 diabetes and funds for JDRF

Kian has only recently been diagnosed with type 1 diabetes but he's already tackling it head on. 

Kian and his family know all about JDRF because they have been joining the Walk to Cure Diabetes for some years to help Kian's auntie, Jodie. Kian's dad has also skydived to raise money for JDRF.

Now it's Kian's turn. Along with his mum and his brother, Conor, Kian has been busy asking people to guess the name of the toy, managing to raise a fantastic £100.

Kian also raised lots of awareness by telling many people all about type 1 diabetes.

JDRF wants to say a big thank you to Kian and all the family!